Our Journey
Brave little Hearts for Michael and Friends was born through the journey of a mother with a child born with a heart defect. Hypoplastic Left Heart Syndrome, HLHS. The left side of the heart was underdeveloped. The cause is unknown and there is no cure. Treatments and medications help manage the symptoms. Michael HLHS was Critical therefore the CICU was his home the first year of his life.
The CHD journey is a hardship on the entire family. As a mother, she was determined to provide the best opportunity regardless of his prognosis. Therefore, she resigned from her career and found ways to gain knowledge and understanding on how to be the best advocate for Michael. Michael’s father who traveled weekly cross state lines to work. The care for Michael ment one income.
Yes, they were fortunate to have family support but they too had a huge learning curve when it came to Michael’s care. Through hard work and sacrifice they found a way. Being a giving family, they also wanted to help other families reach their fullest potential.
In our storm we want to shine our light bright, so others can see their way too. Michael's story inspired the birth of Brave little Hearts for Michael and Friends. Which is now growing and looking for more volunteers and sponsors.
“You don’t travel the CHD road alone. Our heart’s beat stronger, when we help each other.”
~ Michael’s Family
