2019 Fundraiser - Board Picture.JPG

The Board

Hospital

Michael Winchester

The Brave little Heart, Charter Member

Michael’s Story began from the humbling journey of parents with a child born with a life-threatening heart defect. Michael spent his first year of life in Children’s Hospital of Philadelphia’s Cardiac Intensive Care Unit supported by tubes, monitoring equipment, and medical staff. This unfamiliar situation found the family overshadowed with fearful thoughts that included would he live, would he ever come home. Amidst it all, the power of prayer and hope prevailed.

He came home, they continue to hope, fight, and plan for him to live as they continue to learn on- the-job coping mechanisms for Michael’s day-to-day needs.

Unfortunately, Michael’s heart could not handle the stress of his last open heart surgery and he passed on March 6, 2017 just a couple weeks’ shy of his 3rd birthday. Michael was a happy baby and brightened the day of everyone he touched. Please help us continue Michael’s legacy of fighting against the odds and brightening the day of those children and families that feel like they are hopeless.

 

In memory of Michael Richard Croix Winchester, the Pennsylvania State Legislature declared March 6, 2018 to be Hypoplastic Left Heart Syndrome Day To promote awareness of this often fatal heart defect. 

As the charter member, for Brave little Hearts for Michael and Friends and the tough fight he fought daily.  I don't want to ever stop fight for the life of a CHD Kid. Michael was not a long and no CHD KID should be alone. The love that was poured into him was a testimony that love can heal the heart.

We are not all granted a long life but it's what we do with it. The time we share together is the journey, the self-determination to keep going even when the pain seems unbearable.  Michael was a true heart warrior. He smiled and never stopped learning, ( He never stopped teaching). Event through this organization he is helping others, " Life After Death" the legacy to bring awareness and raise funds for CHD Programing. 

Board

Dr. Paulette Jones

Executive Director

Frances Sandoval

Secretary

Carolyn Austin 

Financial Secretary

Marcey Carroll

Treasurer

Varinia was a committed warrior supporting Brave little Hearts from its inception, than her own heart challenges gave her wings to glory.

We miss and love you!

Naomi Winchester 

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William J. Winchester, Jr. 

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William is the father of Charter Member Michael Richard Croix and cofounder of Brave little Hearts for Michael and Friends.   His dedication to the fighting spirit required to advocate for the best medical care for Michael Richard was cultivated while he was in the Marine Corps (’96-’02).  He has infused his passionate message, “never give up” and “give your child a fighting chance” in the life he lived for Michael. William knows this must be the mindset of Congenital Heart Disease (CHD) families as they push through what often feels like a grueling marathon.  

 

Michael’s journey touched his father in an extraordinary way. William returned to higher education in 2016, changing his major from Electrical Engineering to Biomedical Engineering, driven by the specialized needs of his son and the desire to help all children in the uncertain world of CHD. William completed his Biomedical Engineering degree in May 2020. His steadfast devotion to the family unit and commitment to working with CHD families helps them fill the many gaps that health insurance does not cover. 

 

William has worked as a casino/hospitality professional for 16 years, serving various positions in Delaware, Maryland, and Pennsylvania.  He is the proud father of four sons, of which one is now a Heart Angel.

Schyuler Barbour-Johnson

Board Member

Frances Sandoval

Board Member

Destiney Hill

Board Member

Varinia Robinson

Board Member

Brave little Hearts for Michael and Friends

P O Box 610

Plymouth Meeting, PA 19462

info@BravelittleHearts.org

501(c)(3) nonprofit - Human Services provided for families and children impacted by Congenital Heart Disease

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