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Helping Kids with 

Congenital Heart Disease 

One Heart at a Time

Hospital

CHD WORLD 

Congenital Heart Disease (CHD) is the most common birth defect in America, on average affecting 40,000 births per year. About 25% of these babies are born with a Critical Congenital Heart Disease (CCHD) where the heart defect will require multiple surgeries within the first year of life. Brave little Hearts Charter Member, Michael Richard Croix Winchester had the CCHD Hypoplastic Left Heart Syndrome. The left side of Michael’s heart was underdeveloped along with other anomalies resulting in his case being a national study. Our constituents are the 40,000 babies born in a given year whose families need our support while they are caring for their long term hospitalized child praying for the date the doctors clear their child to go home.

 Other families are overwhelmed by the thought of taking their sick baby home.  Babies thrive best in a loving home environment. 

 

Brave little Hearts intends to replicate these services by empowering one family at a time. We have taken this approach because it is a very personal journey. Brave little Hearts for Michael and Friends sees this journey as a matter of the heart.  The relationship we have built with Children’s Hospital of Philadelphia CICU will be replicated to other hospitals that serve CHD families. Funding is needed to for projects and programs to support children and their families impacted by Congenital Heart Disease.

What is CHD?

Congenital Heart Disease (CHD) affects 1 IN EVERY 100 newborns, and it is the most common birth defect worldwide. More than 40,000 babies are born with CHD every year in the United States alone. There is no cure and no known cause for CHD.  We do know  it’s a life-long medical condition and that life-saving surgeries and the love of family is the special hope for these new hearts.

How We Support CHD Families

Community

  • Identify transitional support groups, educational resources and medical advocacy assistance.  

  • Connect caregivers to social activities and events in the community

  • Build Partnerships to grow awareness and increase support for children and their families.

Give

Through our experience of living with a child with a Critical Congenital Heart Disease, we found that there are many gaps in services for this population. It is a difficult process to navigate especially when you are in the midst of a crisis. Families suddenly find themselves in a space where being able to process this new situation is extremely difficult. As they are sorting out their new life, learning all they can about their child’s condition. The need for resources to grow and/or the family does not know the questions to ask?

 

 

Founded in 2015, and incorporated as a 501(c)(3) Nonprofit since 2016.

We established Human Services for families and children impacted by Congenital Heart Disease, CHD. 

All the proceeds go to :

 

The many CHD Awareness campaigns and events we host. 

 

Life sustaining equipment that insurances do not cover.

Resources for family fun activities to medical professionals,  that can support their unique need. 

Research for Treatment Enhancements, there is no real cause so they is no cure. Therefore CHD KIDS have intervention or treatments through the innovation of science medicine.  

CHD is underfunded and most organizations like Brave little Hearts are in place to help fund the research to filling in the uninsured gaps. 

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Community 

Baby Stethoscope

Give

Jar of Coins

Benefits

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Meet Some of Our CHD Kids

Aiden

Is 10 months old and as a CHD baby he has a pre-existing conditions. 

 

Oct. 11 th PA IVS- had glenn in March and so far so good! Born at CHOP and was lucky to have a stent put in 5 days after birth. 

 

Charlie 

At the age of 4, this heart warrior overcame his first OHS at 2 weeks old, he had multiple complications, including a myocardial infarction during chest closure, thus not able to fully close and still has a physical chest deformity.

 

Also due to prior heart attack, he remains in heart failure, but is stable. He remained inpatient for 5 months, coming home with a gtube and many medications. He has had two more Open heart surgeries and multiple caths. 

 

Photos are attached. The first after this first open heart surgery. The second is current, and Smiling. So Powerful!

Grace 


Age: 3 months

CHD condition: Gracie has a large VSD with mild-moderate pulmonary stenosis and had open heart surgery at the end of this past September 2020.

Brave little Hearts for Michael and Friends

P O Box 610

Plymouth Meeting, PA 19462

info@BravelittleHearts.org

501(c)(3) nonprofit - Human Services provided for families and children impacted by Congenital Heart Disease

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