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Helping Kids with 

Congenital Heart Disease 

One Heart at a Time

CHD WEEK 2021  &

Black History Tribute

DESIGN

DESIGN

Girl Raising Hand

Girl Power 

Hip Hop Class
Tomb of Ramose

Anubis

Black History Tribute

Children's Cooking Class
Love

Love Brunch

Hospital

CHD WORLD 

Congenital Heart Disease (CHD) is the most common birth defect in America, on average affecting 40,000 births per year. About 25% of these babies are born with a Critical Congenital Heart Disease (CCHD) where the heart defect will require multiple surgeries within the first year of life. Brave little Hearts Charter Member, Michael Richard Croix Winchester had the CCHD Hypoplastic Left Heart Syndrome. The left side of Michael’s heart was underdeveloped along with other anomalies resulting in his case being a national study. Our constituents are the 40,000 babies born in a given year whose families need our support while they are caring for their long term hospitalized child praying for the date the doctors clear their child to go home.

 Other families are overwhelmed by the thought of taking their sick baby home.  Babies thrive best in a loving home environment. 

 

Brave little Hearts intends to replicate these services by empowering one family at a time. We have taken this approach because it is a very personal journey. Brave little Hearts for Michael and Friends sees this journey as a matter of the heart.  The relationship we have built with Children’s Hospital of Philadelphia CICU will be replicated to other hospitals that serve CHD families. Funding is needed to for projects and programs to support children and their families impacted by Congenital Heart Disease.

How We Support CHD Families

Community

  • Identify transitional support groups, educational resources and medical advocacy assistance.  

  • Connect caregivers to social activities and events in the community

  • Build Partnerships to grow awareness and increase support for children and their families.

  • Advertising and assistant marketing awareness of CHD programs and symptoms.

  • CPR Training and Defibrillators

Give

Through our experience of living with a child with a Critical Congenital Heart Disease, we found there are many gaps in services for this population. It is a difficult process to navigate especially when you are in the midst of a crisis.

Families suddenly find themselves in a space where things are extremely difficult to comprehend. As they are sorting out their new life, learning all they can about their child’s condition. We hope to fill in the gaps with financial resources to assist with a smooth transition.

We welcome volunteers from in the medical and Scientist, Profession. We hope you would assist Patient Advocacy.

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We inaugurate human services for families and children impacted by Congenital Heart Disease, CHD.

All the proceeds go to :

  • CHD Awareness campaigns and events

  • Life sustaining equipment

  • Resources for families unique need.

  • Research for Advancement in Treatments.  

  • CHD is underfunded and most organizations like Brave little Hearts are in place to help fund research.

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Community 

Baby Stethoscope

Give

Jar of Coins

Benefits

Meet Some of Our CHD Kids

Aiden

Is 10 months old and as a CHD baby he has a pre-existing conditions.  Oct. 11 th PA IVS- had glenn in March and so far so good! Born at CHOP and was lucky to have a stent put in 5 days after birth.

Also due to prior heart attack, he remains in heart failure, but is stable. He remained inpatient for 5 months, coming home with a gtube and many medications. He has had two more Open heart surgeries and multiple caths.

Photos are attached. The first after this first open heart surgery. The second is current, and Smiling. So Powerful!

Charlie

At the age of 4, this heart warrior overcame his first OHS at 2 weeks old, he had multiple complications, including a myocardial infarction during chest closure, thus not able to fully close and still has a physical chest deformity.

Grace

Age: 3 months 

CHD condition: Gracie has a large VSD with mild-moderate pulmonary stenosis and had open heart surgery at the end of this past September 2020.

Meet Some of Our CHD Kids

Aiden

Is 10 months old and as a CHD baby he has a pre-existing conditions.  Oct. 11 th PA IVS- had glenn in March and so far so good! Born at CHOP and was lucky to have a stent put in 5 days after birth.

Also due to prior heart attack, he remains in heart failure, but is stable. He remained inpatient for 5 months, coming home with a gtube and many medications. He has had two more Open heart surgeries and multiple caths.

Photos are attached. The first after this first open heart surgery. The second is current, and Smiling. So Powerful!

Charlie

At the age of 4, this heart warrior overcame his first OHS at 2 weeks old, he had multiple complications, including a myocardial infarction during chest closure, thus not able to fully close and still has a physical chest deformity.

Grace

Age: 3 months 

CHD condition: Gracie has a large VSD with mild-moderate pulmonary stenosis and had open heart surgery at the end of this past September 2020.

Bridgette

Age: 2 years

CHD: HLHS

Hypoplastic Left Heart Syndrome

Bridgette is the youngest of four kids, and a beautiful addition to our family. She is gearing up for her 3rd birthday and 3rd Open heart surgery this fall.

Jace

age: 1 year old

CHD: DORV, VSD, severe pulmonary stenosis, and R aortic arch. He was at Boston Hospital for Children

to sustain a Trilogy bipap machine.

CHOP CICU

Eleanour

Age: 3years

CHD:  HLHS, DORV, Heterotaxy, unbalanced av canal. She is currently receiving palliative care because as of now there is no surgical option. She is on oxygen almost constantly while awake.

Leo

Age: 4

CHD condition: transposition of the great arteries. Cardiac cath  the day he was born. Arterial switch operation by Dr. Spray day after he was born. Follows with Dr. Natarajan. Doing great!

CHOP CICU MEALS

Brave little Hearts for Michael and Friends

P O Box 610

Plymouth Meeting, PA 19462

info@BravelittleHearts.org

501(c)(3) nonprofit - Human Services provided for families and children impacted by Congenital Heart Disease

SUPPORT OUR CAUSE
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